Hey everyone! Obviously, I haven't been active on this page for three years. I'm focusing more on the other pages and trying to do better with my social media platforms. Maybe I'll try to do more on this page! But, right now, I'll be working more on other parts of the site. If you have any questions or stories for me, I'd be happy to answer and post them!
Thanks for everything you guys!
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So as a part of my project I have been reaching out to companies like Target and Starbucks and I've received some yes', no's, and no responses. I have even reached out to Northwestern University in Evanston and will be sharing my story with the football team in August with media coverage. Also, I have considered using CustomInk to help me out. They have a program where you can design shirts and sell them on their website for fundraising. I have designed some shirts, but have not put them up for sale yet. I'll get back to you on that.
- 7/14/16 - As the owner, editor, writer of this website I feel comfortable sharing my story. I am a swimmer with epilepsy. It is almost impossible. If you look up athletes with epilepsy you won't find any famous gold medalists from anywhere. But, I am not the only athlete who didn't quit because of one more challenging obstacle called epilepsy. I am strong. No one is the same. One of my coaches is different and he swam. He sat my teammates and I down and said "we all bring something to the table..." Besides my sister and coaches no one yet knows of my condition. I'm not the fastest in my group, but my disorder and my ability to rise up and against my disorder is what I bring to the table. So, now I am asking you all...WHAT DO YOU BRING TO THE TABLE??? Put in the comments below or email me.
Another story I have is being around people. I listen into conversations and am apart of them. Occasionally, my friends throw in the word seizure like it has no meaning and the people who have them are the LOWEST ANIMAL/HUMAN (Mark Twain). But, really they are the lowest. They have no idea what seizures are like. How bad the fighters suffer. The people who have bad cases of epilepsy are my heroes. So, if you hear someone throw around SEIZURE stand up and say NO. Tell them they need to walk a million miles in an epileptic's shoes before they use that word like it has no value. It has been a while since I have posted. Here is why. Lately, I have been surfing the web for epilepsy news - still no cure and have started/managed social media pages for epilepsy awareness. Here is what you have missed from me: Julian Edelman of the NEW ENGLAND PATRIOTS has made a PSA with a girl with epilepsy to raise awareness. First of all, the PATS is my fav football team (yes I am a girl who watches football)!!! I LOVE THEM EVEN MORE NOW! Second, even before the Patriot PSA, Harrison Ford auctioned his Han Solo jacket from Star Wars to raise money for research. I cried the night I found out. His daughter has been seizure free for 8-9 years I believe and his contribution means so much.
*For epilepsy awareness products* Etsy: Search epilepsy awareness or epilepsystore.com Follow Me on Instagram: the_epilepsy_project - 7/11/16 - In the past month, I have reached out to several large companies to see if they will help raise awareness. Many of them have agreed to help such as Starbucks, Target, Talking Rain, Dove, and etc. They have been really supportive and helpful. I'm hoping that if there is a lot of awareness more people will donate to epilepsy research to find a cure. However, there are companies that list customer feedback and idea forms, but they don't listen to their customers. Apparently only families of employees, employees, and staff can only submit ideas. Sorry to burst everybody's bubble, but McDonalds is the company that sent me that response. I emailed them twice! So, one can say they don't care about their customers. I'm still reaching out to companies. Please do the same or donate to epilepsy research to the Epilepsy Foundation.
LET'S FIND A CURE FOR EPILEPSY! PURPLE UP! - 1/24/16 - Hey! I'm new to the blog community. My blog is a little different. Instead of hot gossip, I talk about more serious issues. I'm sorry I won't be talking about the Kardashians. I will be talking about epilepsy. Now I know you may be saying what is this? Is it cancer? What is it? Epilepsy is a neurological disorder that can lead to people having seizures and brain tumors. Seizures and Epilepsy are something that gets diagnosed in 1 out of every 100 people. For more info I recommend looking at http://www.webmd.com/epilepsy/ and www.epilepsy.com (epilepsy foundation). Epilepsy is very important and does not get as much attention as it should. Children with cancer receives more attention. There is no cure for epilepsy, but treatments are around. I feel that with your support, help, and giving these people attention; there is hope to find a cure. I am hoping for more donations for research. I myself have epilepsy. I have seizures at random times. But, there are kids who have several seizures in a day. They are the fighters and they need your help to find a cure. Please spread the word!
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Now and ThenHere are some old posts (on the left) that you might want to read! I do include some gossip, while keeping the stories with epilepsy! ArchivesCategories |